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In May of 1996, Mary Schweitzer had a vision of an
online activist organization made up of People With CFIDS, (PWC's). With
the backing and support of many other PWC's on internet
mailing lists and newsgroups, WECAN came into existence on June 1, 1996.
WECAN has grown to over 220 members working on committees to help with
insurance, government, public relations, research
compilation and media issues regarding CFIDS. Although, the media and the
U.S. Centers for Disease Control use the term CFS, or
Chronic Fatigue Syndrome when referring to our disease, we voted for the
names more prevalent within the CFIDS/M.E./FMS community
itself. CFIDS, or Chronic Fatigue and Immune Dysfunction Syndrome, is the
acronym chosen by the U.S. Congress when referring to the
disease; M.E., or Myalgic Encephalomyelitis, is the name by which this
disease has been known in the U.K. and Canada for many years;
FMS is Fibromyalgia Syndrome, an illness very similar to CFIDS.
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